Shine Lecture Resources

Articles/Books/Reviews

Annas GJ, Healey JM The Patient Rights Advocate: Redefining the Doctor-Patient Relationship in the Hospital Context (PDF)

Annas GJ The Last Resort- The Use of Physical Restraints in Medical Emergencies, NEJM Oct 1999 (PDF)

Annas GJ The Rights of Patients ACLU Handbook https://archive.org/details/rightsofpatients00anna_0

Institute of Medicine To Err is Human-Building a Safer Health System https://www.ncbi.nlm.nih.gov/books/NBK225182/

Wiegman et al Understanding the “Swiss Cheese Model” and its Application to Patient Safety https://pubmed.ncbi.nlm.nih.gov/33852542/

Patient Navigation Studies and Reviews

Impact of a Cancer Screening Program on Breast Cancer Stage at Diagnosis in a Medically Underserved Urban Community Oluwole, Soji F MD, FACS et al Journal of the American College of Surgeons 196(2):p 180-188, February 2003. | DOI: 10.1016/S1072-7515(02)01765-9

History and Principles of Patient Navigation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4557777/

The role of patient navigators in eliminating health disparities https://pubmed.ncbi.nlm.nih.gov/21780089/

Factors Influencing the Implementation of Patient Navigation Programs for Adults with Complex Needs:  A Scoping Review of the Literature Kristina M Kokorelias et al. Health Serv Insights. 2021 Jul 17;14:11786329211033267

Patient Navigators facilitating access to primary care: a scoping review Annette Peart et al. BMJ Open 2018;8:e019252.

Patient navigators for people with chronic disease: A systematic review https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0191980

Efficacy of Patient Navigation in Cancer Treatment: A Systematic Review C.E. Jojola, MA et al. Jons-online.com/issues/2017/march-2017-vol-9-no-3/1604

Legislation/Policy

Patient Navigator and Chronic Disease Prevention Act https://www.congress.gov/109/plaws/publ18/PLAW-109publ18.pdf

Affordable Care Act https://www.healthcare.gov/glossary/affordable-care-act/

American College of Surgeons Commission on Cancer: Standards and Resources https://www.facs.org/quality-programs/cancer-programs/commission-on-cancer/standards-and-resources/

Code of Ethics for Patient and Health Care Advocates 20220607 COE Published-compressed (1)

Healthpair- BU undergraduate student venture to pair students with medical advocates https://www.bu.edu/innovate/profile/healthpair/

Independent Advocacy Organizations/Directories

Coalition of Health Care Advocacy Organizations (CHCAO) https://chcao.org/

National Association of Healthcare Advocacy (NAHAC) https://nahac.com/

Massachusetts Health Care Advocates (MAHCA) https://www.mahealthcareadvocates.org/

Health AdvocateX https://www.healthadvocatex.org/

Patient Advocate Certification Board (PACB) https://pacboard.org

Greater National Advocates (GNA) https://www.gnanow.org/

Advoconnection https://profile.advoconnection.com/

National Patient Advocate Foundation (NPAF) https://www.npaf.org/

Pulse Center for Patient Safety and Advocacy https://pulsecenterforpatientsafety.org/

Other Patient Safety Organizations

Leapfrog Group https://www.leapfroggroup.org/

Anesthesia Patient Safety Foundation https://www.apsf.org/