Shine Lecture Resources
Articles/Books/Reviews
Annas GJ, Healey JM The Patient Rights Advocate: Redefining the Doctor-Patient Relationship in the Hospital Context (PDF)
Annas GJ The Last Resort- The Use of Physical Restraints in Medical Emergencies, NEJM Oct 1999 (PDF)
Annas GJ The Rights of Patients ACLU Handbook https://archive.org/details/rightsofpatients00anna_0
Institute of Medicine To Err is Human-Building a Safer Health System https://www.ncbi.nlm.nih.gov/books/NBK225182/
Wiegman et al Understanding the “Swiss Cheese Model” and its Application to Patient Safety https://pubmed.ncbi.nlm.nih.gov/33852542/
Patient Navigation Studies and Reviews
Impact of a Cancer Screening Program on Breast Cancer Stage at Diagnosis in a Medically Underserved Urban Community Oluwole, Soji F MD, FACS et al Journal of the American College of Surgeons 196(2):p 180-188, February 2003. | DOI: 10.1016/S1072-7515(02)01765-9
History and Principles of Patient Navigation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4557777/
The role of patient navigators in eliminating health disparities https://pubmed.ncbi.nlm.nih.gov/21780089/
Factors Influencing the Implementation of Patient Navigation Programs for Adults with Complex Needs: A Scoping Review of the Literature Kristina M Kokorelias et al. Health Serv Insights. 2021 Jul 17;14:11786329211033267
Patient Navigators facilitating access to primary care: a scoping review Annette Peart et al. BMJ Open 2018;8:e019252.
Patient navigators for people with chronic disease: A systematic review https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0191980
Efficacy of Patient Navigation in Cancer Treatment: A Systematic Review C.E. Jojola, MA et al. Jons-online.com/issues/2017/march-2017-vol-9-no-3/1604
Legislation/Policy
Patient Navigator and Chronic Disease Prevention Act https://www.congress.gov/109/plaws/publ18/PLAW-109publ18.pdf
Affordable Care Act https://www.healthcare.gov/glossary/affordable-care-act/
American College of Surgeons Commission on Cancer: Standards and Resources https://www.facs.org/quality-programs/cancer-programs/commission-on-cancer/standards-and-resources/
Code of Ethics for Patient and Health Care Advocates 20220607 COE Published-compressed (1)
Healthpair- BU undergraduate student venture to pair students with medical advocates https://www.bu.edu/innovate/profile/healthpair/
Independent Advocacy Organizations/Directories
Coalition of Health Care Advocacy Organizations (CHCAO) https://chcao.org/
National Association of Healthcare Advocacy (NAHAC) https://nahac.com/
Massachusetts Health Care Advocates (MAHCA) https://www.mahealthcareadvocates.org/
Health AdvocateX https://www.healthadvocatex.org/
Patient Advocate Certification Board (PACB) https://pacboard.org
Greater National Advocates (GNA) https://www.gnanow.org/
Advoconnection https://profile.advoconnection.com/
National Patient Advocate Foundation (NPAF) https://www.npaf.org/
Pulse Center for Patient Safety and Advocacy https://pulsecenterforpatientsafety.org/
Other Patient Safety Organizations
Leapfrog Group https://www.leapfroggroup.org/
Anesthesia Patient Safety Foundation https://www.apsf.org/